Відео

My husband passed FTD and at the time I didn’t even think to donate his brain. I am so sorry. I wish I had but I love this website and will continue watching it.

God Bless your two families! I was just told 10 years ago i was diagnosed with ftd but doctors never told us . Just said i was depressed. Its got worse the last 6 months and we went to a hospital that does research and they said right away what it was. We fought so many years saying i cant drive and get lost and have trouble with my words. Because doctors never saw the dad days... they said i was just depressed and put me on mefs that flipped me out. Its been so hard but even learning what it is was the hardest. Thank each of you for sharing

Thank you for all you do, Esther!

Thank you for all the work you do!

my father was suffering from dementia. This year he passed away on 12th January 2024. This is a very painful disease. bvFTD Means Shrinkage Of Front Side Of Brain bvftd symptoms are personality changes, patient loses weight, has memory loss, cannot eat on his own, cannot wear clothes, cannot walk and has sleep problems In frontotemporal dementia, the patient also suffers from #apahsia Means loss of voice.he can't speak Science has just found out that there is no cure for this disease, why this disease occurs, science still does not know. Quran had told about dementia 1500 years ago. This is one of the signs of Allah See video-ua-cam.com/video/-MHRbIejyrA/v-deo.htmlsi=gq7YIGRXD7INM6g_

My hope is Tom Nash Jr. ❤❤❤ thank you both so much

Thank you, you are all selfless in this battle.

Amazing sisters. What’s beautiful way to honor your mom. She’s so proud of you, I know it.

Thank you all for sharing your stories. I agree with Bob, the word “dementia” is misleading. People “think” they know what dementia means, i.e. forgetfulness, child-like, unable to answer questions, etc, and they make assumptions about what you can or cannot do. I wish they understood that brain cells are dying, and its a terminal disease.

My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌👌

My prayers are with you all and I know how you all feels, my Dad suffered same illness for 13 years until madida herbal center came to his aid and cured him with their natural PD herbal medicine, Click and search #DrMadida, and let your Parkinson Disease be taken care of and be cured just same way my Dad’s own was taken care of and cured👌👌👌

Is there any hope for treatment or recovery or is it a one way train to demise? 😞Is FTD being researched?

I just lost my Dad to this 7 days ago 💔😭🙏🏽

Thanks to all of you for sharing your thoughts and experiences. Thank you for educating us on what you experience daily and how we can all become better listeners and minimize the stigma associated with FTD. @KevinRhodes, thank you for continuing to educate me and for all that you do.

Thank you so very much for sharing this information. I praise all of those on the council for their courage.

❤️❤️❤️❤️

I'm still here... but I can't remember me... or why... 😮‍💨

Sdaly encouraging...

This and ALS, simply a nightmare straight out of hell. 😢

I’m 59 and going to see a Neurologist, I asked my Dr a few times about Dementia and Frontal Lobe and also Vascular Dementia. It’s been a back and forth journey therapy partial hospital program medications 💊. I have had brain fog and TBI’s . A lot of what was said . I will see what the Neuro says.

🙏🥀🥀

I have enrolled myself for this webinar, but I could not attend it because of illness. I have watched it offline, here on UA-cam. May I still receive an attendence certificate?

How long can FTD symptoms last? 1 to 20 years?

This looks like a "rich person" problem 😔

Thank you for sharing this.

O was unaware i was only a child with it

I am struggling

So sad: so many misdiagnoses! 😢Tragic really.

Thank you for having you 🙏👍 Already watched some WBT's. Greetings from Germany 🫶

I have temp guardianship of my 32 yr old son. How do i get him evaluated for bvftd? The Dr's keep turning him to mental health. He currently lives with me and we struggle with everything mentioned in this video. We are in zip code 48766 Can you please refer us to a specialist in bvftd?

Thank you for making this movie it’s very helpful to understand what is happening to my sister.

Thank you for this.

I wish I had known this was going to be on. :(

Do BVftd patients feel & know their symptoms on early onset? Please answer😊

I noticed my brother having communication issues asap before others. I work as a speech and language assistant. I wish I found this when my brother was going through it. He since passed.

Neurologists need to be educated. We had researched and knew that my brother had FTD. When his Neurologist said he needed to go to a University Hospital because he didn’t know what it was, we asked, isn’t it FTD. He said, no it is definitely not that. Another doctor who didn’t know his business. So sad!!!😢

So we need to purchase this film to see it in complete form? Nope.

THANK YOU FOR MUCH FOR YOUR MINISTRY

I am at Lake of the Ozarks, Mo . My Mom has this disease; we fled from it 7 years ago. it is so terrifying. I feel horrible for trying to explain my symptoms to my family. they weren't even around when she was collapsing in front of our eyes.

Thank you for all of your hard work regarding this humiliating disease

Sad... My mother passed away with vascular Dementia. But she was 85 years old... terrible thing to happen to the ones who raised you and then to watch them decline into a 5 year old is so very hard. Parker, I did see you on the voice... wonderful voice. Place your heart and soul with the Lord and all will be well ... we are here for such a short time. You will be reunited with her sooner than you realize.

My mom has this and its incredibly frightening. I just completed memory work and i call her disease a teenage nazi witch

This is good but incredibly dry

My husband was diagnosed at the age of 58 with BvFTD and 6 months later ALS. I am a registered nurse and he was a GI physician. As devastating as this diagnosis is, I was able to seek information immediately from AFTD and online you tube resources like this. We are almost 2 years into “late” moderate stage FTD. This presentation is exceptional! Thank you. I can say that all the recommendations presented are invaluable to living with this devastating disease.

thank you im so sorry for your loss, thank you so much for doing this work in her name. the specialists i have seen largely dont seem to know what ftd is. they think its the same as alzheimers. a lot of education is necessary at all levels.

God Bless you for your caring!!! Thanks you. Watching my brother at 58 is hard, I can’t imagine if it were one of my children.

🫶👍 My husband had the same (2017) He past away July 2021. Big hugs from Germany.

❤❤❤

I am a nurse and this webinar was aimed at healthcare professionals. As someone with a loved one with FTD, I believe this information is helpful to everyone. Knowledge is power and the more we the caregivers know about FTD, the more we can help advocate for ourselves and others affected by this disease. Thank you very very much for this information. I appreciate the AFTD, Dr. Ducharme and everyone that put this presentation together.

Thank you DO much for viewing FTD and treatment circumspectly. Because this is not common, we caregivers may not "know" how a simple adjustment in environment or expectation can make a world of difference to simply not, jump right to "meds for desired outcome". I understand meds will eventually be needed but me changing what I can to make his life better and easier is a much desired alternative to jumping into meds to make my day easier. Thank you for educating us to alternatives.